0
At the age of six, João Paulo da Guia Ferreira, born in Cruzeiro do Sul, who lives in the bedridden, is hospitalized at the Children’s Hospital in Rio Branco, needing urgent public care in the health area. He is the second child, the youngest, from housewife Maria Dayana Barroso da Guia, 25, resident of the Jequitibá neighborhood. He has chronic encephalopathy, a neurological disorder that affects the brain, causing a wide range of symptoms, including memory loss, confusion, difficulty speaking or understanding language, impaired judgment and personality changes.
Chronic traumatic encephalopathy (etc) is a progressive neurodegenerative disease/ photo: ceded
The disease is also known as “dementia of the boxer.” Chronic traumatic encephalopathy (etc) is a progressive neurodegenerative disease caused by repeated trauma in the head. In the case of Joao Paulo, the diagnosis is “not evolutionary”, but the child also has epilepsy and therefore his care needs are urgent. “He urgently needs mechanical ventilation, proper bed and tracheostomies,” says mother Dayana Barroso, begging for the help of the public power.
Last month, the child spent 19 days hospitalized at the Children’s Hospital/ Photo: Ceded
Joao Paulo lives with his mother in a modest house of the Jequitibá ensemble, in a kind of residential mine -uti. The house’s room, however, is full of moisture and doctors conclude that perhaps the fungi of the residence may come worsening João Paulo’s already severe health. Last month, the child spent 19 days hospitalized at the Children’s Hospital and was discharged to return to his mother’s home and care. It did not pass five days at home and his situation has aggravated again and now accompanied by another problem: in the transport of the ambulance to the hospital, along with other patients, Joao Paulo was accidentally hit by some object that hurt his eye and now the child, who already has difficulty breathing, also has difficulty seeing with the injured eye.
The tracheostomies cannula is a procedure that implies an incision in the neck to open the trachea, where the equipment is inserted to facilitate air intake into the lungs. Tracheostomy, thus, can recover the patient’s respiratory function, but needs frequent maintenance, which would not be happening to Joao, complains mother Dayana.
Hospitalized with her son again at the Children’s Hospital, the mother complains about the visit of specialized doctors and pediatricians. “We are abandoned, unfortunately. We are from the land of the governor of the state and we are asking him for help: Mr. Gladson Cameli, have mercy on us,” Dayana said to the tears.
