Izzy Clements (14) was an active child interested in gymnastics, horseback riding or dance in the past. Her life turned inside out after her painful condition known as “suicidal disease” developed. It is currently teenager strapped to a wheelchair, although experts have tried to reverse her disease for months, . The girl, in her words, has such pain that she sometimes wishes to die.
Izzy lived a completely normal life. But it is changed in September 2022 when she began to experience severe headaches and random dizziness and She has lost up to 10 kilograms within two weeks. Although the medical staff took a young girl to the hospital, were unable to find out what this condition caused. They thought he was suffering from a food intake disorder that was supposed to cause the pain.
At the beginning of December 2022 then a 12-year-old girl from Leicester, England began to feel unbearable pain in the legs and losing strength. Her condition her Eventually he forced to rely on a wheelchair. “She was in the hospital from December to February to could follow the diet plan and undergo physiotherapy. However, they thought the pain was caused by low physical activity, “said Hayley Green, a girl’s mother.
Medical staff later They concluded that a girl suffers from a disease called Complex Regional Pain Syndrome (KRBS). This disease is commonly referred to as “suicide disease” and that Due to the states that some patients have forced to think about ending their own life.
Since Izzy is less than 18 years old, does not have access to stronger pain relief options available in the United Kingdomsuch as spinal cord stimulation, patch with lidocaine or medical ketamine. Nevertheless, the devoted mother was looking for other ways to help her daughter. At the beginning of 2024 She flew with a girl at a clinic in Majorca, where she was provided with a ketamine -based treatment. In the end, however, this method was unsuccessful.
Then on the Internet found that in Italy, doctors offer infusion treatment. “I started to view studies and talk to other patients. I saw that the girls of her age were able to cure themselves from the KRBS. That’s all we want for her, “she said.
The way itself together with the treatment eventually climbed to a dizzying 30,000 euros. The mother helped gifts from people on Gofundme. “Izzy is willing to do anything. She was upset when treatment in Majorca did not help. She is trying to fight, but it hurts her very much,” her mother explained saying that even this treatment of a 14-year-old girl did not completely relieve the pain.
The state of a teenage girl who is at the same time However, the deaf and communicates by reading from lips and sign language, but soon worsened again. Doctors have diagnosed her mast cell activation syndrome (MCAS) and postural orthostatic tachycardia (POTS), which is also her brother Harry. They also found that KRBS can be the cause of deteriorating leg pain but still failed to find a way to stop this disease.
The family was therefore forced to apply for adjustments to your house including installing a stair liftSince Izzy is currently permanently in a wheelchair. “He sees people who are paralyzed and She says she would rather live like this because she would at least feel pain. He often claims that hates her life and takes antidepressants. It’s terrible because I can’t help her, “her mother desperates.
